MOVE 100 MILES IN JULY
The NKH 100 Mile Challenge
A month long virtual challenge. We’re walking 100 miles in July, because children with Nonketotic Hyperglycinemia (NKH) deserve a future.
Get moving through July, for kids with NKH
Move 100 Miles along the Thames Path – Thames Barrier to Streatley! Walk, run, cycle, swim, dance – you choose!
Raise £150 to support your challenge. Anyone, anywhere can participate. All you need is a smartphone.
Where
Anywhere! It’s a virtual challenge. All you need is a smartphone.
When
1 July – 31 July
Want to participate?
Register
Anyone can participate, anywhere in the world! Get access to the 100 Mile Virtual Challenge Mission, log your steps/distance and change the outcome for children with NKH.
Want to support a challenger?
Donate
All funds go to The Mikaere Foundation, to support children and families with NKH and NKH Research done by Prof. Nick Greene at UCL and Prof. Johan Van Hove at the University of Colorado.
How it works
1. You register with us! You agree to fundraise at least £150 for The Mikaere Foundation, to support children with NKH – you can either pay it up front, or add a justgiving page to our team campaign.
2. You’re added to our NKH 100 Mile mission! We’ll email you with everything you need to get started, including dates and app links. You’ll need to download the My Virtual Mission App (available on iOS and Android).
3. The challenge kicks off on the 1st of July – across the month you log your steps, runs, dances (you do you!) on the app, and you’ll see your little icon move along the course.
4. You aim to move 100 miles across the month of July, that’s 7,000 steps a day. You can do it!
5. On the 31 July
6. The Mikaere Foundation uses the funds to support NKH Research and children and families living with NKH. Woo!
About NKH
NKH (Nonketotic Hyperglycinemia) is a rare and terminal neurometabolic disorder in children. One in three children born with NKH are unlikely to see their first birthday, and the other two are likely to be profoundly disabled, experiencing treatment resistant seizures, dystonia and pain, with life limited lives.
Currently, there is no effective treatment. We’re raising funds to change that, to give children with NKH a future.
For more on NKH, please visit www.foundationnkh.org.
About the Mikaere Foundation
The Mikaere Foundation supports children and families living with Nonketotic Hyperglycinemia (NKH). They fund much needed research into an effective treatment, so one day an NKH diagnosis is not as devastating as it currently is.
They also provide information about NKH for families and the medical professionals who support them, and hold community meet ups to build connection and support for families.
The Mikaere Foundation can only do what they do because of fundraisers like this. Thank you for your support!
Find out more: www.mikaerefoundation.org